New Research on hEDS… not just genetic

Why the current medical system fails those with hEDS

It has been referred to as the “diagnostic odyssey.” It can often take decades to get a diagnosis, with patients getting many diagnoses prior to an hEDS diagnosis due to the multisystemic involvement. There …

Does bracing cause atrophy in hEDS patients? Why I think, in many cases, it can actually prevent atrophy and even reverse it! This has come up in patient support groups, so I wanted to write a post about it.

I have a complete anterior cruciate rupture in my …

Is Hypermobile EDS progressive?

I would say the answer is yes, and no, and there is a lot of debate about this.

Genetics:

From a genetic standpoint, many argue that it is not progressive, and as far as the genetic codes are concerned, that is true. Our defective …